tag:blogger.com,1999:blog-4183489297495220757.post1206427235624559994..comments2010-06-07T13:30:34.726-07:00Comments on The Medical Journey of Huntar: Another Road Block.......Huntar's Motherhttp://www.blogger.com/profile/15290338476382984506noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-4183489297495220757.post-46402025825339901542010-05-28T21:29:47.808-07:002010-05-28T21:29:47.808-07:00Thank you all for taking the time to read this. An...Thank you all for taking the time to read this. And for all of your support and thoughts.Huntar's Motherhttps://www.blogger.com/profile/15290338476382984506noreply@blogger.comtag:blogger.com,1999:blog-4183489297495220757.post-19586683189433887302010-05-26T17:03:26.778-07:002010-05-26T17:03:26.778-07:00barb you need a lawyer, to back up your rights for...barb you need a lawyer, to back up your rights for hunter, check out legal services, you have the right to an appeal process on medical if you don;t agree...Anonymoushttps://www.blogger.com/profile/00176952505990225407noreply@blogger.comtag:blogger.com,1999:blog-4183489297495220757.post-21123664243424064562010-05-22T18:37:46.235-07:002010-05-22T18:37:46.235-07:00My name is Steve and I live in Washington State. ...My name is Steve and I live in Washington State. My mom lives in the U.P and directed me to your newspaper article. I am 48 years old and have a form of spina bifida that included a tethered spinal cord. I had surgery in 1996 to un-tether my cord and to remove a mass of fatty tissue on my spinal cord. My case is not rare, but unusual in that I had my surgery when I was 34 years old rather than as an infant. My surgery was performed at the University of Washington by a Neurosurgeon from Seattle Children's Hospital. There is a wealth of information available at www.sbaa.org which is a helpful website dedicated to spina bifida. My initial thought is that a Children's Hospital in Detroit must have Neurosurgeon's experienced with tethered cords and possibly the U of M or MSU may have medical schools that could perform the surgery and alleviate your insurance roadblocks. I would also caution you on dealing with just 1 neurosurgeon...I saw 4 different surgeons and got 4 different opinions as to the severity and urgency of my case. As with any disease, there are different hospitals with different specialties and I can assure you that there are numerous hospitals in the U.S. with the experience in handling your case if you can overcome your insurance issues. Perhaps one thing that may be comforting to you is that in my case, I did not experience significant pain as one of my symptoms. I do have some life-long issues that I would be happy to discuss with you in an email format if you would like. I understand the fear you must be facing and wish you the best of luck. I will check your website in a couple of days and periodically thereafter to see if you have made any progress. Best of Luck to Huntar - from his tethered cord friend in Washington!!!Anonymoushttps://www.blogger.com/profile/03007035138342395759noreply@blogger.comtag:blogger.com,1999:blog-4183489297495220757.post-66291399060226537922010-05-20T13:25:51.506-07:002010-05-20T13:25:51.506-07:00Gustufson family- I am a physician in Grand Rapids...Gustufson family- I am a physician in Grand Rapids, MI and was forwarded this site by a friend. I spoke with a Pediatric neurosurgeon in Grand Rapids, Michigan willing to review Huntar's case. He would need a copy of the complete MRI from Minnesota and is willing to look at it before you would have to travel to Grand Rapids to see him. PLease leave contact information so I can speak with you about this if you are interested. I wish you the best of luck and hope things work out. <br />RobAnonymoushttps://www.blogger.com/profile/13062657535338981668noreply@blogger.comtag:blogger.com,1999:blog-4183489297495220757.post-12482180729623550732010-05-14T18:57:16.211-07:002010-05-14T18:57:16.211-07:00Barb, I pray that a miracle will happen to help Hu...Barb, I pray that a miracle will happen to help Huntar's situation! I believe that he will recieve the needed surgeries, and I will do all I can by passing this info on to others so that the right help will be found! Sending you and Huntar my love! God Bless!belindahttps://www.blogger.com/profile/00710926558778604153noreply@blogger.com